Archie Battersbee died on Saturday afternoon, shortly after the withdrawal of life support after his parents exhausted all available legal routes in their fight to keep him alive.
Clinicians at the Royal London Hospital began the process of switching off the machinery keeping the 12-year-old alive at 10am after the courts had ruled that any continued efforts were against his best interests.
A few hours later Hollie Dance, Archie’s mother, emerged from the hospital in tears, holding onto relatives for support, to break the news of her son’s death to waiting supporters.
Fighting back tears, she said: “In sadness, Archie passed at 12.15pm. I would just like to say I am the proudest mum in the world. He was such a beautiful little boy. He fought right until the very end, and I am so proud to be his mum.”
Intervening on her behalf after she was overcome by grief, Ella Carter, her sister-in-law, said: “He was taken off medication at 10 o’clock, and his stats remained completely stable for two hours until they completely removed ventilation and he went completely blue.
“There is absolutely nothing dignified about watching a family member or a child suffocate. No family should ever have to go through what we have been through – it is barbaric.”